Future Directions for Patient Engagement

Future directions for patient engagement in research: a participatory workshop with Canadian patient partners and academic researchers

Study aims: To identify future directions for Canadian patient engagement in research and discusses its findings in the context of the international literature.

What we did: A multi-meeting pan-Canadian virtual workshop. Thirty participants attended four, 1.5–3h virtual meetings. Participants discussed the current and preferred future states of Canadian patient engagement in research. Themes were generated from conversations that occurred in the workshop.

What we found: 10 target areas for improving Canadian patient engagement in research (systemic integration; academic culture; engagement networks; funding models; compensation models; engagement processes; awareness; diversity and recruitment; training, tools and education; evaluation and impact).