Engaging Patients and Care Partners in Data Analysis and Synthesis

Elevating the Uses of Storytelling Methods

Within Indigenous Health Research: A

Critical, Participatory Scoping Review

Study aims: to examine how storytelling has been used as a method in Indigenous health research on Turtle Island (North America), Australia, and Aotearoa (New Zealand).

What we did: Our collaborative team of Indigenous and non-Indigenous researchers, and Indigenous Elders, patients, healthcare providers, and administrators, conducted a participatory, scoping review. We searched key databases and online sources for studies that involved Indigenous participants and used storytelling as a method in health research.

What we found: We included 178 articles and found a diverse array of storytelling approaches and adaptations, along with exemplary practices and problematic omissions. Our findings can guide respectful storytelling research that bridges divergent Indigenous and Western knowledge systems, to decolonize health research.

Protocol for a scoping review to map patient

engagement in scoping reviews

Study aims: To describe the protocol of a scoping review which will examine how patients and caregivers have been engaged as part of past scoping reviews, and inform the development of a unifying methodology.

What we did: We have developed a protocol for a scoping review of methods used to engage patients and caregivers in scoping reviews of health research. Two patients will be engaged as collaborators throughout this review. We will also consult with patients, caregivers, and researchers upon completion of preliminary analyses.

Expected outcomes: We anticipate that our scoping review will provide guidance for researchers seeking to involve health care stakeholders as co-producers of scoping reviews.

A Virtual, Multi-Session Workshop Model

for Integrating Patient and Public

Perspectives in Research Analysis and

Interpretation

Study aims: To provide a virtual workshop model for integrating patient and public stakeholder perspectives in data analysis and interpretation.

What we did: Our model involves four virtual workshop sessions held on separate days, each achieving the unique goals of (a) establishing participants’ technological literacy within the virtual platform, (b) obtaining responses to the research question, (c) introducing participant perspectives into research analysis and interpretation, and (d) prioritizing research findings or future research agendas.

What we found: This paper contributes toward a toolkit for patient engagement in research. Our model could be applied in research areas where there is currently minimal patient engagement. We also provide a practical approach to engaging with patients virtually, with a specific discussion of equity, diversity, and inclusion.